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Blu
- Joined
- December 2018
- Visits
- 12
- Last active
- March 2019
- Roles
- Member
- Pronouns
- she her hers
- Badges
- 0
Comments (3)
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Yeah, I've been living on TPN on and off ever since I was born and it's a lifesaver. I see my nutritionist and gastroenterologist every month to make adjustments to the TPN. My nurse comes over once a week to check my vitamin levels, platelets, ev...in Genetic and biology based modsMarch 2019
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I have the GJ tube now (the tube through my abdominal wall). But it took a long time to get it because its permanent and my doctors needed to figure out what was wrong with me before they started doing more surgeries. After a few years of travelin...in Genetic and biology based modsMarch 2019
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This discussion hasn't been active for a while but I feel like I should say something about this because I've been living with Nasogastric (NG) and Nasojejunal (NJ) tubes for years. I also have a port so I can be fed through my heart when I don't ...in Genetic and biology based modsMarch 2019